About Tracy Chen
Interview conducted by Agnes Collison on October 29, 2020
Location: Philadelphia, Pennsylvania
Tracy Chen is an 18 year old woman with nemaline rod myopathy. She requires a ventilator to breathe and uses an electric wheelchair for mobility.
Tracy's Story: English
Describe a typical day in your life before COVID-Describe your days now. Are there people you cannot see due to COVID? How are you coping with these temporary loss of connections?
Due to my medical conditions, I have been living away from my family since I was six months old. Before the lock-down in March, I went to school on weekdays unless I had medical appointments. We also made a lot of social outings and I really miss those. On Sundays my family visited me: mom, dad and my two younger brothers. They haven't been able to visit since March, so that's been the hardest. I talk or text, sometimes Face Time with them on the phone, but it's just not the same. My parents only speak some English, and I do know a little bit of Chinese but not a whole lot because I have never lived with them. So, it's hard to feel connected.
Describe the challenges you are experiencing due to COVID. How do these challenges impact your future plans?
Not seeing my family [SINCE COVID-19] is definitely the hardest. My residence couldn't accept visitors after the lock-down, so I didn't see my parents and brothers for almost five months!
Tracy's Story: 畅所欲言 (Mandarin)
The Chinatown Disability Advocacy Project (CDAP)
The Chinatown Disability Advocacy Project is a grassroots group of parents and community members who educate and advocate for inclusion in education, healthcare, and social life. We hold monthly workshops, education sessions and community activities, so people have information to best plan for themselves and their families. You can follow the Chinatown Disability Advocacy Project on Facebook to find out about our activities.
华阜残障倡导会是一个由家长与社区成员共同组成的团体。我们的使命是运用教学和拥护的方式，提倡在教育，医疗保健，和社交生活的社会融入。我们每个月提供讲座，教育培训，和社区活动，以期提供资源，帮助大家和家人更好的计划未来。请您在臉書上跟随Chinatown Disability Advocacy Project 来参与我们的活动。
About the Project
This project was made possible with generous support from the Independence Public Media Foundation.
For more information
Contact us at firstname.lastname@example.org.