SAMPLE

RRTC on Home- and Community-Based Services (HCBS) Outcomes Research and Measurement: Phase III Pilot Testing

External Sponsor

Plain Language Summary

Our team is testing an outcome measure designed to assess the person-centeredness of home and community-based services (HCBS). We’re looking for adult HCBS recipients on Medicaid waivers to pilot test these measures. They address concepts like choice and control over living arrangements, money management, and personal expression.

Who Can Participate

• People with disabilities

How You Can Participate

• Surveys

Paid Opportunity?

This is a paid opportunity.

Contact

Ross Kaine; rkaine@sralab.org

Posted 2/26

The Experiences of Students with Physical Disabilities in Navigating the Built Campus Environment and Engaging in Higher Education

Temple Sponsor

Plain Language Summary

This study looks at the experiences of college students with physical disabilities. It focuses on how accessible they feel their campus is, how they get around campus, and what physical barriers make things harder for them. The study also explores how campus accessibility affects their ability to participate in classes, activities, and campus life overall.

Who Can Participate

• College students with physical disabilities

How You Can Participate

• Survey; optional follow up interview

Paid Opportunity?

This is a paid opportunity.

Contact

Maria Aguilar Walls; tup91790@temple.edu

Posted 2/26

Use of Service Animals in Employment

External Sponsor: Southwest ADA Center at TIRR Memorial Hermann

Plain Language Summary

The Southwest ADA Center at TIRR Memorial Hermann is carrying out research into the use of service animals and emotional support animals by people with disabilities in the workplace. The information gathered will help us 1) understand how people with disabilities use service animals and emotional support animals to assist them in the workplace, 2) explore the experiences of these users and any barriers they may encounter at work, and 3) determine what factors contribute to successful employment outcomes. These findings will also improve the trainings and technical assistance that the Southwest ADA Center at TIRR Memorial Hermann can provide on this topic.

Who Can Participate

• People with disabilities who use service animals or emotional support animals

How You Can Participate

• Participant in interviews

Paid Opportunity?

This is a paid opportunity.

Contact

Jocelyne Fajardo: [click-for-email]

Posted 5/28/24

Person and Environmental Factors Predicting Community Mobility of Young Autistic Adults

Temple Sponsor

Plain Language Summary

This study aims to understand what factors affect the ability of autistic young adults to move around in their communities. We want to figure out what personal traits and environmental factors impact their mobility the most. This includes things like their individual characteristics, how well they can move, how confident they feel, and how much control they have over their own lives. We're also looking at things in the environment, like whether places are easy to get to, how much support they have from others, and how society views autism.
 
We're doing this by talking to autistic young adults themselves and hearing about their experiences. By studying how these different factors interact, we hope to get a better idea of what makes it harder or easier for them to get around in their communities.

Who Can Participate

• Young adults with autism

How You Can Participate

• Participate in interviews

Paid Opportunity?

This is a paid opportunity.

Contact

Amber Davidson, [click-for-email]

Posted 5/28/24

Next Generation Augmentative and Alternative Communication Technology Powered by Artificial Intelligence

Temple Sponsor: Temple Computer and Information Sciences

Plain Language Summary

For this study, we are looking to develop AI enabled games and technology that respond to both vocal speech output and speech generated output from AAC applications. We have four researchers as part of our team who use AAC, and we are recruiting AAC users as well as caregivers of AAC users to interview and gather their perspectives and recommendations on the ideas before we start prototyping.

Who Can Participate

• AAC Users
• Caregivers of AAC users

How You Can Participate

• Participate in interviews and provide feedback and recommendations.

Paid Opportunity?

This is not a paid opportunity.

Contact

Beth Garrison: [click-for-email]

Covid-19 Experience Study

Temple Sponsor: Institute on Disabilities

Plain Language Summary

The Institute on Disabilities wants to learn more about how the Covid-19 pandemic affected people with disabilities in Pennsylvania. Life at home and in the community changed a lot for many people. Sometimes those changes were difficult, but not always. We are talking to people with disabilities about their experiences to better understand how people felt during the pandemic and how Covid-19 affected their lives.

Who Can Participate

• Adults 18 years or older
• Live in Pennsylvania
• Have a disability

How You Can Participate

Interview by phone or video conference.

Paid Opportunity?

You will be paid.

Contact

Aidan Campagnolio, [click-for-email]

Policies for Reproductive Outcomes in Medicaid–Improving Services for Enrollees with Intellectual and Developmental Disabilities (PROMISE-IDD)

External Sponsor: Rubenstein Lab at Boston University School of Public Health

Plain Language Summary

The overall aim of this study is to gain a better understanding of the experiences of pregnant people with intellectual and/or developmental disabilities (IDD). In the long-term, we hope this study will contribute to improving pregnancy-related health care experiences and outcomes for people with IDD. For more information about the study, please visit: http://sites.bu.edu/rubenstein/promise-idd/.
 
As a part of this study, we're recruiting a Community Advisory Board (CAB) to provide insight and feedback on study methods, materials, and findings. Our CAB will mainly consist of people with IDD who have experienced pregnancy. We want to learn about their lived experiences and incorporate their perspectives throughout the research process.

Who Can Participate

• People with a documented IDD diagnosis
• 18 years of age or older
• Speak and understand English
• Be currently pregnant or have experienced a pregnancy in the past 10 years
• Have lived in the U.S. while they were pregnant

How You Can Participate

• Meet approximately twice per year for 60-90 minutes over Zoom.

Paid Opportunity?

You will be paid.

Contact

Mack Toth, [click-for-email]

Evaluating the Use of an AI-enabled Virtual Assistant to Support Neurodivergent Workers
in Interview Skills

Temple Sponsor: Computer and Information Sciences

Plain Language Summary

For this study, we are looking to create AI-enabled interview coaches to support neurodivergent workers in learning interview skills. We currently have a neurodivergent student researcher helping us with the software development, and are also seeking neurodivergent participants to interview to gather their feedback and design recommendations about their experience interviewing for employment as well as the prototype ideas before we develop a prototype.

Who Can Participate

• People who identify as neurodivergent

How You Can Participate

• Participate in interviews, analyze data, and provide feedback and design recommendations

Paid Opportunity?

You will be paid.

Contact

Beth Garrison [click-for-email]

Access for Intellectually and/or Developmentally Disabled People to Health-Related Research projects: AIDD2Health

External Sponsor: Sonoran University Center for Excellence in Disabilities

Plain Language Summary

We are intellectual and/or developmental disabilities self-advocates, supporters, and researchers in Arizona. Our project is called AIDD2Health: Access for Intellectually and/or Developmentally Disabled People to Health-Related Research projects. By using universal design principles, we are working to develop strategies, tools and models that others around the U.S. can use. Based on our listening sessions with self and family advocates, as well as professionals, our team has developed a health priority survey. This survey will help us to identify priority health areas, based on the broader input by self and family advocates.

Who Can Participate

• You are an adult with intellectual and/or developmental disability (IDD), or
• You support someone with IDD

How You Can Participate

• Complete this survey for AIDD2Health
• Watch this video to learn more about AIDD2Health

Paid Opportunity?

This is an unpaid opportunity.

Contact

Yumi Shirai: [click-for-email]

Evaluation of the Use of the Continuum of Assistive Technology Mastery (CATM) by VR Counsellors

External Sponsor: Georgia Institute of Technology, Center for Inclusive Design and Innovation, College of Design

Plain Language Summary

Rehabilitation Research and Training Center (RRTC) on employment for people with physical disabilities grant.

In this project, we want to help vocational rehabilitation agencies improve the support they give to people with physical disabilities to help them get jobs and to be successful at work. We want to find out how a tool for measuring a person's mastery of their Assistive Technology could help do this.

Who Can Participate

• People with disabilities

How You Can Participate

• Participate in focus group

Paid Opportunity?

This is a paid opportunity.

Contact

Ben Satterfield: [click-for-email]

Posted 2/13/24