Research studies that include disabled people, family members, and other key community members produce better results. Disabled people and their family members are experts on issues like access to services, transition, employment, self-advocacy, and more.
Ways to Participate
You can participate in research in many ways.
- Some studies include disabled people on an advisory board or on the research team.
- Some studies interview disabled people or ask them to fill out surveys.
- Some studies include family members or disability service professionals.
When you participate in research you can improve the study's impacts, learn new skills, and earn money.
You can read about different research studies and how to participate below. Some of the studies are led by the Institute on Disabilities. Studies led by other organizations have been reviewed by the Institute on Disabilities.
Sharing Studies
You can share these studies with people you think would want to participate. Please do not share information about these studies on social media (Facebook, Twitter, Instagram, etc.).
Contact: Please email iodres@temple.edu or call Eva Weiss at 215-204-7177 with any questions or concerns.
Opportunities
Project ENGAGE
External Sponsor: Syracuse University and Columbia University
Plain Language Summary
Project ENGAGE at the Syracuse University and Columbia University want to learn what adults with intellectual disability think about being included in a new type of health research. They will use what we learn to create new resources to help researchers include adults with intellectual disability in health research. They will ask adults with intellectual disability to share ideas and experiences in a survey. It is ok to not have experience with health research or know much about it.
Who Can Participate
- Adults with intellectual disability
How You Can Participate
- Take a survey on a computer, over the phone, or by paper
Paid Opportunity?
You will be paid.
Contact
engageinpmr@syr.edu, 1-800-295-2187
Managing through the Pandemic
Temple Sponsor: Institute on Disabilities
Plain Language Summary
The Institute on Disabilities wants to learn more about how the Covid-19 pandemic affected people with disabilities in Pennsylvania. Life at home and in the community changed a lot for many people. Sometimes those changes were difficult, but not always. We are talking to people with disabilities about their experiences to better understand how people felt during the pandemic and how Covid-19 affected their lives.
Who Can Participate
- Adults 18 years or older
- Live in Pennsylvania
- Have a disability
How You Can Participate
Interview by phone or video conference.
Paid Opportunity?
You will be paid.
Contact
Aidan Campagnolio, acamp@temple.edu
Community Autism Peer Specialist (CAPS) Study
External Sponsor: Drexel CAPS
Plain Language Summary
The CAPS study provides an opportunity for autistic young adults to receive peer support from another individual on the spectrum. The CAPS program is a great opportunity for autistic adults who want to return to work, school, spend more time with friends and family, or participate in other activities within their community. The CAPS program prioritizes the goals of autistic individuals. Services are provided by a trained CAPS professional who is also on the Spectrum to talk about goals. The goal of our study is to measure the effectiveness of the Community Autism Peer Specialist program.
Who Can Participate
- Autistic young adults (18-30 years old)
- Live in Philadelphia
How You Can Participate
- Receive peer support from another autistic young adult
- Fill out a survey
- Participate in an interview
Paid Opportunity?
You will be paid.
Contact
caps@drexel.edu, 215-839-8207
Contact: Please email iodres@temple.edu or call Eva Weiss at 215-204-7177 with any questions or concerns.