Chapter 6: Tom Moves to the Community, Faces Challenges, Moves Temporarily to Allentown State Hospital
21:03:07:15 - 21:03:47:25
Lisa: When it was time for you to move to community who helped you transition from Pennhurst and find a place in the community?
Tom: My social worker, Bonnie Gerber. She came out to talk to me and after that I came out of Pennhurst then I was... then I went to Allentown State, I went to Hilltop Haven. Then I came out of there. Then I started on East Broad Street and whatever.
21:03:48:15 - 21:03:54:28
Lisa: So tell me...
Tom: And I moved to Airport road and it's now [? ] and I enjoy it.
21:03:56:13 - 21:04:08:09
Lisa: So tell me a little bit about Bonnie. Do you remember meeting her the first time?
Tom: I don't know too much. I just know that she was my old social worker.
21:04:08:17 - 21:04:22:10
Lisa: What did she tell you about leaving Pennhurst, do you remember?
Tom: No.
Lisa: Was it difficult to trust someone you didn't know who was going to tell you to leave a place you had lived all of your life and move someplace else?
Tom: No.
21:04:24:29 - 21:04:53:25
Lisa: When you first left Pennhurst what was that day like? How did it feel to leave?
Tom: I sort of felt sad about it and I feel that I was like in the [?] where I turned around and I got happy about it.
21:04:54:18 - 21:05:03:09
Lisa: Why were you sad about it at first?
Tom: I wasn't sure if I would drop a tear or whatever.
21:05:06:15 - 21:05:40:08
Lisa: How did you turn the mountain?
Tom: Huh?
Lisa: You said you turned the mountain. What made you turn the mountain?
Tom: That I - that I decided to move - that Bonnie helped me move out and started the workshop in the community and the OVR. Then now I'm not doing OVR. I'm working with Jeff who works with me doing work and doing volunteer work.
21:05:42:10 - 21:06:06:08
Lisa: Did you move into your own home when you first left Pennhurst?
Tom: I moved in a home with some people and I got used to knowing them and they got used to knowing me. Then I had a couple incidents where I was back at Allentown State and back out.
21:06:09:25 - 21:06:19:17
Lisa: Tell me about Allentown State. Why did you leave your community home and go to Allentown State?
Tom: Well I had a little bit of a problem but I don't discuss that.
21:06:21:00 - 21:07:05:04
Lisa: Okay. Can you describe Allentown State School for me?
Tom: Not really.
Lisa: Is it a place that you liked living?
Tom: No. Well let me say that I used to have a girlfriend named Maggie [Sterner]. She went from Pennhurst, Allentown State... No. Pennhurst, Emeryville, Hamburg, Allentown State and she's now living with her sister. I don't know where they're at now but she also was in Life Path and whatever.
21:07:07:04 - 21:07:28:27
Lisa: So Tom, I'm wondering, you had friends at Pennhurst. You had your community at Pennhurst. You moved to the community where you had housemates, you moved back to Allentown State. Was it hard to keep your friendships and your relationships with all the moves?
Tom: Well I just remember people who I was with and when I was with.
21:07:33:27 - 21:07:53:11
Lisa: Was the Allentown State School - was it like Pennhurst was it different than Pennhurst?
Tom: It was different.
Lisa: How was it different?
Tom: Because Pennhurst there's like eighty percent grounds. You take it from that thing to there (pointing from left to right) and all the way out. That's how big Pennhurst is.
21:08:10:27 - 21:08:27:11
Lisa: So Allentown was smaller?
Tom: Yeah.
Lisa: How did it being smaller affect you?
Tom: I just figured out to compare it with Pennhurst and Allentown State.
21:08:31:16 - 21:08:51:20
Lisa: You wanted to leave Allentown State?
Tom: Well in a way, yeah. That way I don't have to be put in the timeout room or something like that. But I came a long way since Life Path took over.
More Interview Chapters
- Tom's Childhood
- Tom's Experience at Pennhurst; Buildings, Residents, Staff
- Mistreatment at Pennhurst
- Working at Pennhurst
- Conditions at Pennhurst Exposed in the Media, Talk of Closure
- YOU ARE HERE: Tom Moves to the Community, Faces Challenges, Moves Temporarily to Allentown State Hospital
- Tom Returns to Community, Finds Employment, Becomes Active Volunteer, Presents on Pennhurst at Meetings and Conferences
- Tom Reflects on Life
About Tom Delmastro
Born: 1950
Advocate, Newspaper Delivery, Volunteer Work
Keywords
Employment, Home and Community, Institutions, Pennhurst, Volunteer
The Disability and Change Symposium is available as a free online learning module.
Combating Implicit Bias: Employment
About this year's theme
Employment statistics for persons with disabilities continue to be disappointing, ~19% compared to ~66% of peers without disabilities. (US Bureau of Labor Statistics, 2018). We ask ourselves, "is there something beyond overt discrimination and access that perhaps we need to address? Are there silent barriers such as those created by implicit bias?"
Most of us believe that we are fair and equitable, and evaluate others based on objective facts. However, all of us, even the most egalitarian, have implicit biases – triggered automatically, in about a tenth of a second, without our conscious awareness or intention, and cause us to have attitudes about and preferences for people based on characteristics such as age, gender, race, ethnicity, sexual orientation, disability, and religion. These implicit biases often do not reflect or align with our conscious, declared beliefs.(American Bar Association, Commission on Disability Rights, "Implicit Bias Guide," 2019)
This year's theme challenges us to each ask ourselves "What implicit bias(es) do we have and encounter, and how do we recognize them and move beyond them to create opportunities, welcome, and full participation for all?"
As always, this Symposium privileges first-person voices and experiences.
About the Disability and Change Symposium
The stated goal of the annual Symposium is "to create conversation that transcends any one-dimensional depiction of people with disabilities, and foregrounds the multidimensional lives of our speakers - as writers, educators, performers, and advocates."
The Disability and Change Symposium is a one-day, interdisciplinary conference focusing on cultural equity and disability. The event is free, accessible and open to the public.
Acknowledgments
Organized by the Institute on Disabilities at Temple University, the Symposium is an outcome of collaboration with the Interdisciplinary Faculty Council on Disability whose mission is "to foster collaboration across Temple University on disability-related projects including research, teaching, programming, publication, and grant-seeking. By connecting with one another, Council members help build community among the growing number of people at Temple whose work engages with disability."
Core funding for the Disability and Change Symposium is through a grant from the Center for the Humanities at Temple University (CHAT)
We extend our appreciation to Disability Resources and Services for providing Communication Access Realtime Translation (CART) and American Sign Language services for the day.
The Institute on Disabilities, Temple University College of Education is pleased to recognize some of our 2020 Symposium Partners/Sponsors from Temple University:
- Center for Bioethics, Urban Health, and Policy (CBHUP), Lewis Katz School of Medicine
- Center for Humanities at Temple (CHAT), College of Liberal Arts
- Dean of Libraries
- Dean of Students
- Delta Alpha Pi International Honor Society
- Disability Resources and Services (DRS), Student Affairs
- Division of Student Affairs
- Faculty Senate Committee on Disability Concerns
- First Year Writing
- Intellectual Heritage
- Interdisciplinary Faculty Council on Disabilities
- Office of Institutional Diversity, Equity, Advocacy and Leadership (IDEAL)
- School of Sport, Tourism, and Hospitality Management
This year we also want to recognize the contributions of students (Associate Professor Deb Blair, STHM 2114 - Leisure & Tourism in a Diverse Society), who contributed to shaping and supporting this symposium:
- Madeline Culbert, School of Sport, Tourism, and Hospitality Management; Bachelor of Science: Tourism and Hospitality Management (est. 08/2021)
- Jair Guardia, School of Sport, Tourism, and Hospitality Management, Bachelor of Science: Tourism and Hospitality Management. (est. 08/2021)
- Hallie Ingrim, School of Sport, Tourism, and Hospitality Management Bachelor of Science: Tourism and Hospitality Management
- Thomas Leonard, School of Sport, Tourism, and Hospitality Management Bachelor of Science: Tourism and Hospitality Management (est. 08/2021)
- Bryan McCurdy, School of Sport, Tourism and Hospitality Management, Bachelor of Science: Tourism and Hospitality Management (est. 05/2022)