#visionariesaremade - Father's Day 2017 / page 6

June 2017

Visionaries are not born; they're made.

What makes someone a visionary? Perhaps it's the ability to see possibility where others do not.

Mark, Alexander, Sophie, and Helena

Studio photo of Mark, Alexander, Sophie, and Helena
Photo by Cecilia and Jacob Lee

Mark: These are people I care most about. The people I spend all of my time with. These kids are my world...and my wife of course!

They're all fun. They all have their personalities and quirks. Alexander has his video games. We're making a robot. I have a really hard time telling my kids "that's a bad idea". We wind up doing things no one else does. We get to do fun stuff.

These girls keep grounded. I enjoy doing stuff for them, doing the housework, putting them to bed at night, giving them a hug and a kiss, wishing them sweet dreams. I like to be there when they wake up. They are my morning, my evening and everything in between.

[Parenting a child with a disability] takes time and patience. It tends to be a lot of works and frustration, but it's worth it. It puts things into perspective. You like to think you've grown as a person; when you see others who haven't had your experiences it can be jarring. It's like you're in two different worlds. There's some jealousy about that sometimes. But you have challenges and those make you stronger on an individual level.

There's a sense of humility, seeing the divergent experiences of people; there's empathy that comes with that. It makes you more aware that everybody has their own difficulties.

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Institute on Disabilities at Temple University
University Center for Excellence in Developmental Disabilities Education, Research and Service