Research and Evaluation

For 50 years, the Institute on Disabilities has committed to inclusive and innovative research. We partner with disabled people, families, service providers, researchers, and policymakers across every phase of research.

Evidence-Based Research

We conduct evidence-based, qualitative and quantitative research on the issues that matter most to disabled people and have the greatest impact on lives. We identify and address gaps in understanding, raise up lived experience and challenge ableism, racism, and other systemic oppression. We evaluate the efficacy of current service models and best practices.  

We ensure accessible information reaches the communities and policymakers who need to know.

About our language choices

Our Major Research Program Areas

  • Deinstitutionalization from Pennhurst to Hamburg
  • Disrupting the School-to-Prison Pipeline
  • Transition and Employment
  • Migration

About Our Language Choices

We recognize that language has profound political power and material consequences in people’s everyday lives. Read more below:

Language and Social Justice

We recognize that language has profound political power and material consequences in people’s everyday lives. We also understand that language and its impacts change in different times and spaces.  

We listen to and respect discussions within the disability and other marginalized communities regarding the benefits and impacts of person-first, identity-first, and political/relational language choices. We honor individual preferences and work with communities to select the most representative and justice-oriented language for each context. We also rely on trusted language justice activists and sources, including the National Center on Disability and Journalism and APA Equity, Diversity, and Inclusion Inclusive Language guidelines, which distinguish between individual qualities and systemic inequities. When speaking demographically, we currently use the terms disabled people, Latinx, and marginalized or equity-deserving, and capitalize Black and lowercase white.

Share Your Thoughts

Please share your thoughts or questions about our language choices with us at or 215-204-7177.

Language Access

If you require information or resources in another language, please email or call 215-204-1356.

To ensure accessibility, research findings are published as academic journal articles as well as plain language reports and videos on relevant project pages.  

Spanish Language Outreach

As a member of the Office of Developmental Programs' Information Sharing Advisory Committee (ISAC) Racial Equity Subcommittee, the Institute on Disabilities collaborated on the design of a Spanish-language survey and resources to collect data on service disparities experienced by racially and ethnically marginalized communities.   

Supported by Philly Counts, the Institute on Disabilities designed Spanish-language resources to increase Census participation among the historically undercounted Latinx and disability communities as well as provide crucial information about COVID-19.

 

Contact: Please email or call Eva Weiss at 215-204-7177 with any questions or concerns.

Independent Monitoring for Quality

Thousands of people with disabilities, family members, and support professionals in Pennsylvania are interviewed each year by the Independent Monitoring for Quality (IM4Q) project to learn about the overall quality of life for people who receive support through the Office of Developmental Programs (ODP) in Pennsylvania, with the objective of providing information that might help improve the quality of life of people with disabilities. More about IM4Q