Empowering People with Intellectual Disabilities and Families by Making Community Inclusion Real

The Centers for Medicare and Medicaid Services (CMS) Home and Community Based Services (HCBS) Settings Final Rule builds upon decades of federal disability policy initiatives focused on increasing person-centered practices, the realization of basic human rights, and full community inclusion. It was created to impact residential and day service settings funded through Medicaid and to promote choice of daily activities and person-centered planning

All HCBS settings must:

  • Be integrated in and facilitate access to the greater community;
  • Allow individuals optimized autonomy and independence in making life choices;
  • Be chosen by the individual from among residential and day options, including non-disability specific settings;
  • Ensure right to privacy, dignity and respect (including no coercion or restraint);
  • Provide opportunity to seek competitive employment;
  • Provide for choice of roommate in a residential setting; and
  • Encourage choice of services and choice of who provides them.

The Pennsylvania Project

The Institute's project, funded by a grant from the PA Developmental Disabilities Council, addresses the need for system change in HCBS through a series of education, advocacy, monitoring, and reporting activities

Advocacy and Education

A "Train-the-Trainer" model is used to help inform self-advocates and families about the Rule. Trainers (self-advocates and family members) also assist in the developing of training modules.

Monitoring Activities and Data Collection

Independent Monitoring for Quality (IM4Q) reports are used to determine a baseline for where Pennsylvania stands with the Rule.

For More Information

Jamie Ray-Leonetti