The Institute and the Sibling Leadership Network Release Survey

January 2015

PHOTO: two adult sisters using laptop together
Two adult sisters at laptop together highlight the need for ongoing support.

The Institute on Disabilities is working with the Sibling Leadership Network on a project to study the support needs of siblings of individuals with disabilities.

The project has created the National Survey about Siblings of Individuals with Disabilities, their Support Needs, and their Families and invites all siblings of people with disabilities, and others, to share their perspectives.

The online survey is open to the following:

  • Siblings of people with disabilities
  • People with disabilities
  • Parents of adults with disabilities
  • Professionals working with people with disabilities and their families

The link to the survey is: [link removed]

The survey is available in English and in Spanish will take less than 30 minutes to complete.

Questions or requests for the survey in alternate formats should be emailed to

SIBLING FOCUS GROUPS: 5 locations across Pennsylvania in May and June, 2015 [link removed]

This project is funded by the Pennsylvania Developmental Disabilities Council.

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Institute on Disabilities at Temple University
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